About me
PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Wednesday, September 28, 2011
Newspaper article
Today several articles appeared simultaneously in various newspapers about my story and the collection of poems. It has been very hectic here, the phone hasn't stopped ringing, the e-mails continue to pour in, and interest in my little book with its big message seems to be spreading fast. Several months ago, when I started writing the first poem, I had no idea it would touch so many people near and far. Like throwing a stone into a pond, the rippling effect continues and I hope my "happy gene" spreads to you all. Wishing you good health.
Tuesday, September 27, 2011
Sleepless nights!
Like
many Parkinson's patients, I can't sleep at night. If I do manage to fall
asleep, it is only for a couple of hours, then I wake up. Trying to get back to
sleep again is frustratingly difficult. Sometimes from sheer exhaustion, I will
sleep a few extra hours, but sleep is always disrupted, and I now envy what I
took for granted; a simple 8 hours uninterrupted deep refreshing sleep!
The
other night, I was in bed staring at the ceiling, and realising I was not going
to fall asleep, I decided to get up. It was 02:30, so I tried to make as little
noise as possible, trying not to disturb my family. I entered the kitchen so
quietly, that I made our dog jump and for a split second she thought I was an
intruder. She barked fiercely baring her teeth, scaring the living day lights
out of me! I quickly talked in a gentle voice calling her name, to assure her
it was just me, and not to attack. Thankfully, she realised within seconds, and
stood down. Wow was she scary. I wouldn't
like to get on the wrong side of her, that's for sure. I may be
chronically ill , but I clearly don't have a heart problem, for seeing a Dogue
de Bordeaux ready to attack, barking, and showing those large fangs with 'shoe
strings' of slobber hanging from her huge open jaw, would be enough to send some
people into cardiac arrest!
Monday, September 26, 2011
Safety First
How
does one know when to give up driving? It's a difficult question and a hard
call to make. No one wants to lose their independence, but the thought of causing an
accident, and hurting someone, makes me stop and seriously question my competence
and ability. I stopped driving at night two years ago, and now only drive short
distances within our little village. I have a feeling that my driving days are
numbered, and it won't be long before I hand over my car keys. When one's judgment
and reactions aren't as quick as they should be, and distance perception is
impaired, I think it's time to call it a day. My life is changing, and I have
to accept the fact. We all have to face things in life that we'd rather not,
but when it comes to safety - there is nothing to debate.
Sunday, September 25, 2011
Who doesn't love ice-cream?
I
don't know if as we get older that one's tastes simply change, or that some of
the Parkinson's medications I'm taking, are effecting my palette.
I
NEVER used to eat ice-cream, and now love it. Of late, I would quite happily pass up
eating a healthy nutritional meal to eat an ice-cream sundae, topped with
peanuts, pieces of fudge, not forgetting the warm dark chocolate sauce liberally
poured over the top. Let's face it, if you're going to be "naughty",
then you may as well do it properly! I don't do anything by halves! Just in
case you are wondering, I have it on very good authority, that there are
absolutely no calories what so ever in this devilishly delicious decadent
desert!!!! (if you believe this, you'll believe anything!)
I
always used to eat water melon only at room temperature, but now thoroughly
enjoy it cold straight from the fridge. Go figure!
I guess change is good, and one should embrace it, but I'd be
interested to know if anyone else is experiencing similar odd
changes regarding food, either due to medication, or that like me, you are no longer a spring
chicken!
Friday, September 23, 2011
Have a good weekend!
Why is
it on a golf course, having a "handicap" is a good thing? Being
disabled, the word "handicap" doesn't summon up a positive image in
my mind when playing sports. Does this mean that disabled people would feel at
home on a golf course? I somehow doubt it, although I like the idea of whizzing
around in one of those electric golf carts! What ever you are doing this
weekend, have fun, and take time to rest, re-charge your batteries, and enjoy
being with those you love. Wishing you all good health!
Thursday, September 22, 2011
Getting Wheels
Getting
a wheel chair was a huge step for me. Unfortunately I have reached the stage where I can no
longer walk around a shopping mall, or along the promenade at the sea front, or
join in on day trips with my family. My legs just don't want to know, it's like
they've gone on strike, and they don't even belong to a Union! So it was either
being left at "home alone" (sounds like a good title for a film!) or
getting a wheelchair! Well I wasn't
about to be left out anymore, so one evening, we went to a shop along with the
measurements and specifications the physiotherapist had taken for me, and the
right wheelchair was chosen. Sitting in it, I felt really strange, almost
surreal. I've sat in hospital wheelchairs, and at airports, but never been in a
shop with the express intent on buying one for myself, to take home and keep!
It took me a few days to get my head around this, but seeing it here at home, I
came to terms with my new "chariot" (after all, many great ladies in
history had their chariots - Helen of Troy, Boadicea, The Queen of Sheba - it's
just mine doesn't come with horses!) It's been so long since I was at a shopping mall, now I have my "charriot" I can't wait to go! Although suspect my husband's credit card is shuddering at the thought!
Tuesday, September 20, 2011
Lost sense
Losing my sense of smell, being one of the early signs of Parkinson's is
very annoying to say the least. I used to know when a cake was ready just by
using my nose. Now I have to rely very much on my kitchen timer, otherwise I
would be serving my family burnt offerings. How I miss the smell of freshly
baked bread that is still warm, herbs that have just been picked from the
garden, the delicous intoxicating smell of chocolate, a powerful fruity bouquet
of a good wine, freshly mowed grass, and smelly garlic bread strong enough to
keep away the hungriest of vampires! All of us are guilty of taking things
for granted, and only once they're gone, do we truly realise what we've lost. So
when you smell something good today, appreciate your sense of smell.
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