Sometimes it’s difficult for my husband to get a word in edge-ways. I always insist that being a chatterbox is inherited, and therefore can’t help it (well that’s my excuse and I’m sticking to it!) I thought I’d give my husband a chance to have his say today, so I will now hand over the keyboard to my better half:
OK October has arrived, so that means its Gaucher Awareness Month. Personally I became aware of Gaucher many years ago, when Elaine and I were dating and getting serious, she said to me one day “I’ve got Gaucher disease”. At that point I think I became wary, but after listening to Elaine’s explanation, I asked a friend of mine who is a doctor and I decided to read up on what it meant to live with Gaucher and what if any implications it would have on our future relationship. Well the more I found out the more I realized there was nothing so scary being “wary” and informed became “being aware”.
Becoming aware of a new subject is simply learning about something that previously was unknown. So let’s do everything we can during October to educate people so they understand what Gaucher disease is and how it manifests itself in different people. Gaucher disease is not something to be afraid of; the more aware people are, the more questions and research will be done to help sufferers. Thanks, let’s spread the word……
Did Napoleon say: “Not tonight Josephine”, or was it a Gaucher or Parkinson’s patient? Take a look at my article in The Huffington Post if you're not sure!