An inspirational story of a friend who has Gaucher disease yet able to run marathons, is the topic of my article this week in The Huffington Post.
Neural receptors are losing their way,
Parkinson’s people are having to pay.
Substantia nigra falls into decay,
Black barren neurons are out on display.
Why is the Dopa-mine leaving our brain,
Express expulsion with speed of a train.
When eighty percent has dwindled away,
Developing P D is what Neuros say.
Fumble your fingers and twiddle your thumbs,
Shiver your lumbar and waggle your bums.
Fiddle with buttons and grapple with belts,
Putting your shoes on with horn surely helps.
You open the door and can’t let it go,
Froze to the handle and all in slow-mo.
Typing some letters takes such a long time,
Missing the square keys along every line.
Eating your dinner will embarrass some,
Wife cuts my meat up, but not like my mum.
Scooping my peas up with ladle or spoon,
Helps me to finish not later but soon.
These are the trials that befall us all,
Don’t let them conquer or Parkies will fall.
Grinding your molars will strengthen your mind,
Snarl like a wolf and leave pity behind.
By Peter Middleton 2008 ©