About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, December 14, 2018

Clear the decks.


Our house is beginning to look like a hospital rather than a regular home. There is often a traffic jam around the kitchen island. At a quick glance, one couldn’t fail to notice the presence of a wheelchair, a walker (Zimmer frame) a pair of crutches, and various pill boxes, i.v. stands, an assortment of medical apparel and emergency numbers along with prescriptions on the fridge door.

One might wonder why we have non-matching chairs in the lounge, and should you happen to spend an evening in our household, you’ll likely participate in playing Parkinson’s musical chairs. You’ve never heard of Parkinson’s musical chairs?  Well let me explain. Similar to the children’s party game, only there is no music and there,has to be at least one person present, who suffers from Parkinson’s disease. I spend most evenings moving from chair to chair, alas in vein, hoping to find a comfortable position.

We have tried to find an armchair that is comfortable for me and being short, it’s not easy finding a chair with small dimensions. We thought we’d found one, and bought it, but once at home, I found it wasn’t as comfortable as I had thought in the shop. We couldn’t return it, and so this was the first of a succession of chairs in our quest for the perfect chair. 
    
Sitting in a chair on display in a shop has likely been sat on by hundreds of customers and can feel completely different from the brand new one delivered straight from the manufacturer to your house wrapped in its protective plastic. After a further unsuccessful purchase of another chair, I began to realise, it’s not the chair that’s the problem, but yours truly. It’s as if I don’t feel comfortable in my body. So our quest for a comfortable chair has come to an end, and each evening I continue to move from chair to chair.                                

5 comments:

  1. Delighted to read your latest Blog. I had truly missed reading your humourous lines but realised that your situation recently didnt give you the opportunity
    Welcome back (or shouldnt I refer to"back").
    Anyway I loved your your post of today and fully appreciate your words
    Warmest Wishes to You and Your Hubby

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  2. I so appreciate you sharing your life. I also have Parkinson's
    and share so many of your obstacles. Laughing is always better
    than crying in frustration. With you in spirit.

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  3. So happy to hear you’re still hanging in there and relieved to see your blog again. We also have the problem with chairs and so far don’t have a solution. Thanks for sharing your life. And the most happy holidays wishes to you.

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  4. My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.

    ReplyDelete
  5. My dad was diagnosed with Parkinson’s disease.his symptoms were shuffling of feet,slurred speech,degradation of hand writing, horrible driving skills, right arm held at 46 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure from ULTIMATE LIFE CLINIC, he now walks properly and all symptoms has reversed, he was having trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which really helped him a lot,the biggest helped we had was ultimate life clinic they walked him through the proper steps,i recommended this http://www.ultimatelifeclinic.com to anyone who also needs help.

    ReplyDelete