About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, January 16, 2012

I’m kind of tied up this morning!

Once every two weeks I find myself attached to an intravenous line at home for 1 ½ hours, receiving the Enzyme Replacement Therapy for Gaucher Disease, which keeps my condition more or less in check. I wish the same could be said for the cocktail of pills I take for Parkinson’s, as this is somewhat like a roller coaster ride never knowing in advance how I’ll feel or what the day will bring. Unrelenting and unpredictable are the two words that encapsulate Parkinson’s Disease very well. The nurse will be arriving here shortly, so I will have to leave you for now, but wish everyone a good day, stay warm and dry – it’s a good day for a bowl of delicious hot soup!

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