About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, March 19, 2012

Family medical history

Looking at statistics about various diseases, it makes me wonder whether our generation is more prone to disease due to our fast paced lifestyle than previous generations, or is it simply that today we freely talk about illness that was once frowned upon and accurate diagnosis methods have come a long way. A huge factor that also comes into play is today’s technology, making the world a much smaller place. Computers, e-mail, Internet all at our disposal, are connecting hospitals, R&D, doctors, patients and caregivers from all around the globe, thereby sharing information and statistics. I was looking at our family tree that was made some years ago; using many sheets of A4 paper cello taped together resembling a paper patchwork quilt. Whilst looking at this faded dishevelled map of our family, I suspect many of my ancestors had Gaucher, but were never diagnosed back in those days when little was known about this rare disease. Keeping records of family medical history is important and can possibly help future generations. Thankfully today, most information is kept on computers making it easy to keep and retrieve when necessary.

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