About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, May 10, 2013

No energy

Of late, my energy levels have been so low, I literally feel as though I am fading away. Fatigue is a symptom not only of Parkinson's but Gaucher too, so I am endowed with a double dose. How lucky am I? It is difficult to describe the severity and extent of this tiredness, for the word 'fatigue', 'exhaustion' or 'depleted' don't seem strong enough to fully express what I am experiencing. Sometimes I can barely speak, and feel so bad, I can hardly function at all. Well meaning and caring people keep telling me to not do so much; rest, have a nap, but this scarcely helps and does not solve the problem. Long term fatigue takes its toll and cannot be resolved easily. Fatigue in Parkinson's can be caused or made worse by slow movement, muscle stiffness and when medications during the day start to wear off. These fluctuations effect mobility and often I find the best time for me is first thing in the morning, so I try to take advantage of this and get the things done that I need to, but doing too much - again leads to fatigue, so pacing myself is crucial. There is also muscle fatigue, painful cramping, tremors and shaking which all put stress on muscles making them work very hard. Who needs a membership to a gym when you have your own private work out from Parkinson's for free? It's like a vicious circle - there is no end.

My latest article for The Huffington Post has just gone up on-line if you'd like to take a look.

Wishing you all good health and an enjoyable restful weekend.

1 comment:

  1. I can relate to everything you have said re fatigue & chronic illness. I have MS. And on some days I look fine, whereas on other days like today I am absolutely washed out I ache all over. Rest just doesn't seem to help.
    You are an inspiration! Keep it up!