About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, October 20, 2013

Narrative Medicine Article

Speaking at a Conference recently, solely for those in the medical field specialising in Gaucher disease, I could tell from the response to my talk that several points I made during my 45 minutes allotted time, had not been heard before. Patients are generally reticent about coming forth with what they consider personal information, feelings, fears or thoughts. All this very pertinent information, may seem trivial to a patient, and feel awkward, but a doctor needs to hear the entire story, which is where narrative medicine comes into play. Understanding completely the complexities of any serious illness should be part and parcel of one's health care, but both parties (doctor and patient) have to realise the importance of this extra information and put it into practice. Some piece of seemingly insignificant information that a patient has not bothered mentioning for fear of sounding silly, may in fact be the missing piece of the puzzle when a doctor is trying to make an accurate diagnosis and treatment plan. A doctor can only work with what he is given. Sometimes even an extensive gamut of medical tests wont give the entire picture without the patient's story.
My advice to doctors, is to please take the time to listen to your patients if they are trying to tell you something. And equally important - if you are a patient, put your dignity or any embarrassment aside, and tell the doctor your entire story. With both parties co-operating, you have the best scenario possible.

My story has been featured along with other interesting articles in "A Journal of Narrative Medicine. If you would like to take a look at this informative site, The Intima is an on-line Journal dedicated to Narrative Medicine.

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