Here is a poem I wrote one night, when unable to sleep. I thought it rather appropriate since October is Gaucher Awareness Month. The poem is entitled "Diagnosis" relating to Gaucher disease:
Diagnosing a rare disease, is difficult a task,
Relieved to rule out cancer, you continue to ask.
Why are platelets low and haemoglobin out of whack?
Still awful diseases in one's mind lurk at the back.
A doctor cannot know every single rare disease,
Hence correct diagnosis doesn't come with ease,
If no family medical history exists to help give a clue,
Appearing you're the first with something entirely new.
It can take a long process, which is highly frustrating,
But once on the right path the doctor begins debating.
Gaucher a rare disease, passed on from mother and father,
Often affecting siblings, a sister or a brother.
Many years ago, a sternum puncture, was the only way,
Of determining Gaucher, but this is not the case today,
Now it’s a simple blood test, no pain or fear,
Will give a diagnosis that's absolutely clear.
Technology and medicine have improved by far,
With greater awareness, we intend to lift the bar.
October is Gaucher Awareness month internationally,
Together we campaign, as a worldwide family.
To bring better understanding of Gaucher, a disease that’s rare,
Help me spread the word, and show how much you care.
Written by Elaine Benton 2014©