About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, January 30, 2015

A recipe for disaster

It’s all very well and good giving sound advice, but I might do well on occasion to heed my own words of wisdom. I have always loved cooking, so for years made my own jams and marmalade. As if trying to prove I’m wonder woman in the kitchen, refusing to let Gaucher and Parkinson’s dictate what I can, and cannot do, I pushed myself to the very limit, and made a batch of jam. Yes …..I know, I’m an idiot at times! There are certain things that just don’t go together, such as a shaky Parkinson’s patient and a large pot of scalding jam! This is a recipe for disaster, just waiting to happen.

It took me forever to wash and tediously cut up the fruit, which should have made me realise I was taking on far more than I am now capable of. Only once the jam was merrily bubbling away, like some kind of witches brew, did I begin to wonder how I was going to lift the heavy preserving pan, not to mention bottling the jam which would require a steady hand. Why I hadn’t waited for my daughter and used the opportunity of teaching her how to make preserves, goodness knows? We are all so much wiser with hindsight.   

I ended up making a dreadful mess and it took forever to clean up. There seemed to be sticky jam on every surface including yours truly! Fortunately this tale does not end in disaster, but was far from a sweet reminder of the things I can no longer accomplish and should clearly not attempt. When I think of all that I used to do, without a bat of an eyelid, it’s so frustrating and difficult to really take in and accept my present situation. Inside I’m still the same old “me”, but my body and mind are far from in sync.

Coming to terms with losing the ability to do what we used to, is a hard pill to swallow. I don’t think it matters what disease you suffer from, or if merely age is creeping up on you – none of us can do what we did when young and healthy.

The first symptom that comes to mind when people hear the name: Parkinson’s, is ‘shaking’, but as anyone suffering this disease will attest, there is so much more. When I mention the pain caused by Parkinson’s, many are surprised, so I decided to write this week in The Huffington Post about one of the painful aspects in an article entitled: The Pains of Parkinson’s.

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