About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, September 11, 2015

Cycling for Gaucher disease

On September 6th, Madeleine Abramson participated in a yearly sponsored bike ride from London to Cambridge, again choosing to represent Gaucher disease in aid of raising funds and awareness of this rare disorder. 

As always, the race started from The Royal Free Hospital in Hampstead (London) and ended at Addenbrookes Hospital in Cambridge. A rather appropriate start and finish line as both hospitals have excellent Gaucher research centres.

There were a total of 76 riders, of which 69 were riding in aid of Gaucher disease and the remainder for various other charities. Amazingly two of the riders were Gaucher Type 1 patients who were accompanied by their families. What a great achievement for fellow sufferers to participate in such a ride. The weather was perfect – a sunny beautiful day. The 100 km route (63 miles) took the riders through some beautiful English villages such as Buntingford, Nuthampstead, Newton, Sheldon and Newgate Street. With four designated stops, each offering wonderful refreshments, it took Madeleine 7 hours to complete the ride. A grandmother and her daughter, kindly volunteered again this year to bake a delicious assortment of cakes which were served to the participants when they arrived at the finish line. 

It’s not too late if you’d like to donate, so please go to the official “mydonate” site. Thank you Madeleine on behalf of all Gaucher patients and their families. If you'd like to read more, take a look at my article in The Huffington Post.



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