About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, January 22, 2016

Disease progression

Another week has come and gone and in this house emotions have been running wild with all the frustrations and worry of living with a degenerative disease. Hearing from fellow Parkinson’s sufferers, and knowing others are experiencing the same symptoms and side effects of medications is comforting. However this does not alleviate my physical suffering, and this past week I must say, has pushed me pretty much to the limit. I am not one to make a fuss, but with Parkinson’s claws deeply set in my flesh, tearing my life apart and laughing at any dreams I might have of the future, it’s hard to find my smile and keep it upon my face.

I feel compelled to continue writing this blog, to log my journey with Parkinson’s in an honest and truthful manner, in the hope of spreading awareness about a disease that needs all the help it can get for people to truly understand how terrible it is. What will next week bring? I’ll just have to wait and see.

I have relied heavily on my husband this week and family and friends whose constant support love and care, keep me going. In this respect, I guess I can say with hand on heart that I am truly blessed to be surrounded with loved ones in times of need. 

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