About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, March 18, 2016

Last Post

As Parkinson's disease progresses, my body feels tired, but I'm grateful to have clarity of mind. I have dedicated the last five years to blogging, writing endless articles, and expending great efforts with the sole purpose of helping create greater awareness and connect with others in similar situations. I never dreamt that my blog would be followed in over 70 countries around the world. However, after much thought, I have come to the decision to bring my tireless campaigning to an end for I feel that the time is right for me to prioritize how I use my energy.

Don't think for one moment I'm giving up or giving in, but hope you understand that I want to spend more quality time with my family and friends. With my “on” episodes being so erratic, I wish to spend more time in the warmth of their loving embrace when I can enjoy them. My typing has become extremely slow and it is difficult to do what I once did and so the need to conserve my energies to spend time with family and friends, enjoy being in the garden, and going on short outings has become my first priority. Being realistic, the sands of time continue to flow through the glass and no amount of wishing can magically make the grains slow down or stop.

It is therefore with a heavy heart, that today’s entry in this blog will be my last. Over the past few years I have taken you with on my journey, sharing with you along the way useful information, my thoughts and emotions, which hopefully have given you food for thought.

I would like to thank all who have been following me, for you have given me in return support and encouragement to carry on writing. I wish you the very best, success in all your endeavours, but most of all, good health.

This site will remain on-line should anyone wish to read back through the archive, or purchase any of my books.

I wish you good health and for now bid you a fond farewell.


  1. A wonderful post by a wonderful friend. The world has lost a great voice; but I wish her the best in the coming years.

  2. I just found you today but so glad that I can look back & read more. My dear husband of 36+ years is a PWP & so I understand the decisions of what to spend your engerg on.

  3. My dear Elaine,
    You have shared so much joy, tears, experiences and quirkiness, I am just one of so very many that's been blessed by your faithful and loving heart. We will miss you, but you so deserve the family time and time to take a break.
    You will NEVER be forgotten!
    Love, Lisa

  4. Elaine you continue to inspire me with your perseverance. Whenever I struggle to express myself or can't seem to find the time to write I think of you and feel encouraged to get to it! Thank you for all you've done for the Gaucher community. Finding your writing and poetry has been a great gift to me. Thank you for sharing so openly and honestly. Love, Emma

  5. I am having my GBA gene sequenced as i sit here. Nine joints with avascular necrosis and a tremor. I will certainly benefit from your site, and wish you the very best as you continue your journey and i embark on mine. Thank you for leaving your blog up.

  6. Hi Elaine, thank you so much for sharing your experiences - I understand you may not see this now, but my mother who also suffers from Parkinson's is equally creative and written an amazing new play about her experience. Thought you may be interested in it. Kind regards, Ben. https://www.indiegogo.com/projects/kinetics-a-new-play-about-parkinson-s#/

  7. Pretty good post. I just stumbled upon your blog and wanted to say that I’ve really enjoyed reading your blog about Parkinson's Treatment