About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Tuesday, June 26, 2012

Keeping hopeful

Reading the news, it is very encouraging to see that every so often a story appears, reporting on new research or clinical trials related to Parkinson’s and various similar diseases. With so much happening all over the world, it gives me hope that maybe we are not too far off from finding a cure, or at least a treatment that stops the disease from getting any worse. There is definitely greater awareness today about Parkinson’s and many people doing wonderful voluntary work, fund raising, running events for support groups and doing all they can to ensure the momentum continues, keeping this disease in the forefront of the media, encouraging the doctors, scientists and pharmaceutical companies to strive forwards in finding relief for the millions of sufferers around the globe. I am in the unusual position of suffering two diseases, Gaucher and Parkinson’s which puts me in a very small group, and from what I understand there may be only a few hundred recorded cases like mine in the entire world. Put together a rare disease and a fairly common disease, and a special category is created. Believe me; I would much prefer not to be quite so ‘special’ for apart from my late brother, I have met only one other person, who like myself has these two diseases. You may well have gathered, a support group for Gaucher patients with Parkinson’s does not exist!

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