About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, December 22, 2013

Parkinson - Gaucher Connection

I would like to thank someone who reads my blog and left a comment the other day regarding the connection between Gaucher disease and Parkinson's. It was extremely thoughtful of you to think of me, and I very much appreciate you sending the link to this  very interesting article. Here is the link should anyone else be interested in reading about the Gaucher - Parkinson connection.
Sharing information, good useful tips and a general sense of community support through the internet has been extremely helpful to those who live in isolated areas, unable to attend support groups. Unfortunately I fall into this category, which is what prompted me in the beginning to write a daily blog, realising I couldn't possibly be alone in this position, and that there must be others in similar circumstances, unable to meet face to face with fellow sufferers.

What ever disease a person is suffering from, along with their caregivers, family and friends, support is of great importance. We all need a little help now and then. The comforting feeling of knowing we are not alone is crucial, and it is a boost to one's morale to be in touch with those who truly understand what you are going through. 

1 comment:

  1. Thanks for your kind words Elaine. I am glad this information was of interest to you - I thought given it was such new research that you might not have seen it yet. That particular website is a really good one to keep an eye on for recent developments in the study of neurological disorders. Parkinson's often gets a mention. You can subscribe to a daily email notification that keeps you up to date without any effort.