About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 3, 2015

Obsessive Compulsive Sex

As I sit here in the middle of the night, with fingers poised above the keyboard, I wonder who you are that reads my blog? Are you a patient like myself? Or a caregiver? Or did you stumble across my site by accident? Whoever you are, “Welcome”. Pull up a chair and make yourself comfortable, for I’m about to discuss what most people consider an uncomfortable subject to air. I have never been one for shying away from taboo matters, and so with no further ado, let’s jump straight in!

We’ve all heard of the side effects caused by some Parkinson’s medications that result in obsessive compulsive behaviour, mainly associated with gambling, sexual activity and shopping. I have personally experienced the “shopping phenomena” which was so out of character, my family and I fortunately realised very quickly what was happening. Once a problem is identified, a solution can be sought.

I came across an article written by Marc Jaffe published in the New York Times, “Finding Equilibrium in SeesawingLibidos”, which is about the sensitive topic of sexuality and Parkinson’s disease. I applaud Marc and Karen for their courage in addressing openly a very difficult and personal topic, sharing with us all their experience, allowing important information to be brought out into the open. I am sure Marc and Karen Jaffe are far from alone.

Bringing issues like this into the open, we must cast aside any shame or stigma, so that those suffering similar side effects know these are problems that need addressing, and cannot be swept under the rug. Staying informed and receiving support from family, friends and your healthcare providers, is vital when living with any serious disease.

I think we’d all agree, there’s no place like home! Take a look at my latest article in The Huffington Post.