About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 17, 2015

Understanding Parkinson’s

It takes courage to film one’s self and allow the world to see exactly what it’s like to live with Parkinson’s disease. One spirited young man, Kendall Lay, has done exactly this. He usually makes short films about other patients, with the intention of lifting spirits by encouraging and showing support to fellow sufferers. However with Parkinson’s Awareness Month in mind, one of his recent films portrays himself at various times of the day exhibiting Parkinson’s, leaving no doubt or confusion as to what happens when medications are working and when they are not.

This short film was not meant to dishearten anyone, but plainly shows the simple truth, in an attempt to educate and bring further awareness to the debilitating symptoms and side effects experienced by those living with Parkinson’s.


Even some members of my own family don’t understand why I appear almost unaffected at times, and on occasion can witness the harsh realities of the disease. Caught at the right time of day, my medications are working and I can function to a fair degree, but catch me in an “off” moment, when the medications have ceased to work, and you’ll hardly recognise me. Understandably confusing to those who know little or nothing about Parkinson’s, it can appear that one minute you have a debilitating disease and the next it has miraculously disappeared. 

Worrying about when I'm going to next freeze is a waste of energy, but nonetheless, it is in the back of my mind and perhaps yours too. Ever frozen in the supermarket and left wondering if anyone noticed? Have a read about my escapade this week in The Huffington Post.

3 comments: