About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, June 22, 2018

Hold Still

I was having an X-Ray and the technician said to me “Hold still.” I did my best to stop wriggling and shaking, but it wasn’t good enough to produce a clear X-Ray. The technician had to start again and re-positioned me, repeating loudly in case I was hard of hearing (which I am not), “Hold still” while he quickly disappeared behind the protective booth. Try as I might, I could not stop moving. The technician, rather irritated, repeated the performance once more.

Third time lucky, I thought to myself, but I moved just as he was taking the X-ray. By now, he was running out of patience and muttering under his breath, said, “What’s wrong with this idiot?” “I am not an idiot, I have Parkinson’s!” I replied indignantly, furious with his lack of empathy. If anyone was an idiot, it was the technician, but of course, my good manners refrained me from saying this out loud. He stopped in his tracks and stood still. Slowly turning around, he looked me in the face for the first time since I had entered the room and apologized.

He had seen ‘Gaucher disease’ and the instructions of what needed to be X-rayed on the form I’d given him. It was written quite clearly a little further down the page, that I also suffer from Parkinson’s, but he had not bothered to read everything. If he’d had the decency to look at me, he would have realised I have Parkinson’s.

You’ll be pleased to know that for the fourth X-Ray, I held my breath and concentrated hard on not moving. Success at last and I was able to leave the X-Ray department.


Years ago, one would have to wait a considerable time for the X-Ray, which would be inside a large brown envelope. Today it’s much easier, as X-Rays along with a written report, go straight into the hospital’s computer system. By the time I got back upstairs to the ward, the doctor had already seen my X-Ray and read the report. How times have changed.

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