About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, December 14, 2018

Clear the decks.

Our house is beginning to look like a hospital rather than a regular home. There is often a traffic jam around the kitchen island. At a quick glance, one couldn’t fail to notice the presence of a wheelchair, a walker (Zimmer frame) a pair of crutches, and various pill boxes, i.v. stands, an assortment of medical apparel and emergency numbers along with prescriptions on the fridge door.

One might wonder why we have non-matching chairs in the lounge, and should you happen to spend an evening in our household, you’ll likely participate in playing Parkinson’s musical chairs. You’ve never heard of Parkinson’s musical chairs?  Well let me explain. Similar to the children’s party game, only there is no music and there,has to be at least one person present, who suffers from Parkinson’s disease. I spend most evenings moving from chair to chair, alas in vein, hoping to find a comfortable position.

We have tried to find an armchair that is comfortable for me and being short, it’s not easy finding a chair with small dimensions. We thought we’d found one, and bought it, but once at home, I found it wasn’t as comfortable as I had thought in the shop. We couldn’t return it, and so this was the first of a succession of chairs in our quest for the perfect chair. 
Sitting in a chair on display in a shop has likely been sat on by hundreds of customers and can feel completely different from the brand new one delivered straight from the manufacturer to your house wrapped in its protective plastic. After a further unsuccessful purchase of another chair, I began to realise, it’s not the chair that’s the problem, but yours truly. It’s as if I don’t feel comfortable in my body. So our quest for a comfortable chair has come to an end, and each evening I continue to move from chair to chair.