About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, October 28, 2011


Fatigue is one of the most common and debilitating symptoms of Parkinson's disease. It's very difficult to put into words the extent to which the sheer exhaustion just consumes and takes over one's body. To say that I am tired, or exhausted, or depleted simply doesn't do it justice, yet I cannot find a stronger word to describe the incapacity that totally engulfs me. Due to the constant insomnia, sleep deprivation takes its toll, and therefore I find myself taking cat naps (or 'power naps' being the new fashionable term!) in a comfortable armchair, instead of laying down in bed. This in no way makes up for the lack of a good night's sleep, but I guess it keeps me going. Last night I managed to get just two hours sleep, and trying not to disturb my husband, I lay there listening to music on my MP3 player for hours. Wouldn't it be great if all PD patients could somehow get together and have a party in the middle of the night when we are all awake and suffering from the frustrations of insomnia! We could have cocktails, shaken not stirred of course, dance the jitterbug or shake rattle and roll until the dawn. I wish you all a good weekend, and to any PD sufferers, a good night's sleep!

1 comment:

  1. just read today's blog Elaine, I'm so sorry you had such a bad night's sleep and especially after we had such a good evening together eating dinner by the beach.We enjoyed it so much. I started reading your book after I went to bed, didn't want to put it down but Barry insisted I turn off the light so I have continued reading it today in between doing the normal Friday chores. I have just finished reading it. I don't know what to say - I'm overwhelmed - I'll try to put it into words when I see you tomorrow. Wishing you a better night - much love to you both - Janet x