Most days I manage the pain and discomfort of Gaucher and Parkinson's, but yesterday afternoon got a bit much even for me. Normally the cheeriest and stoic of patients, I took to my bed, but laying there tucked warmly in my quilt, felt little respite from the constant bone and muscle pain. Gaucher and Parkinson's normally take it in turns to drive me to distraction, but yesterday they decided in unison with full force to make their vile presence known. Anyone suffering chronic disease has good and bad days, but today is a new day, and I hope a better one.
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.