I was asked a rather harsh question yesterday which at the time felt extremely cruel, yet later upon reflection, I thought this valid subject needed addressing. I was asked “Do I feel guilty that my husband and family have the painful task of taking care of me now I have Parkinson’s?” My answer is this: YES of course! But (there’s always a ‘but’ as nasty as this little word is!) no one knows what tragedies or ill health await us, and it's probably better this way, for if we knew what lay in store, it would without doubt be too much knowledge to cope with. When marrying, as the famous line we've all heard a thousand times comes to mind, ‘for better or for worse'’, you fall in love, marry, start your new life together with hopes and dreams for the future, but none of us know for sure what lays ahead. Some lucky couples are blessed with good health, and some like me are unfortunately afflicted by ill health. But with any affliction, something good always accompanies it, you just need to have ability to see past the initial shocking realisation to comprehend that this may not be what you expected, but it’s not the end of the world. I would be in denial and lying to you if I were to say that I didn't wish I was healthy and strong, and that my life hasn't changed drastically over the last few years ultimately changing that of my husband and family. However, love that is true and steadfast will stay put like superglue, despite all the difficulties we are put through, and are held very much together by this invisible bond. So yes, I admit there are times I feel guilty at what my husband is missing out on, and the things he has to now do for me, but it is counterproductive to ponder too long on these negative thoughts. This is what life has dealt me, so we make the most of it. A marriage certificate has no ‘good health clause' in it; there is no guarantee or sale and return. You marry someone because you love them with all your heart, and together accept whatever the future will hold. On the positive side, it has given us the wonderful opportunity to help others, and this is priceless.
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.