Despite being in pain and feeling very unwell at times, keeping active is vitally important. It is sometimes a fine line between doing enough exercise to keep ones muscles and range of movement, and yet not overdoing things, causing pain or damage. Having Gaucher and Parkinson’s proves very difficult in getting the correct balance of exercise just right. I am fortunate to have a wonderful team of physiotherapists at our local health center, who are excellent. After learning a whole regime of exercises, I am able to continue doing these at home, which I conscientiously do twice a day.
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.