About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Monday, December 3, 2012

Parkinson's in space

I've met many Parkinson's patients who have been able to continue working, and although they may have to make some allowances along the way, possibly adjusting the work day to slightly shorter hours, they manage to hold down a job. Being able to continue with one's career if possible, is obviously the best scenario. Apart from keeping physically mobile, the mental stimulation and feeling that each morning you have a place to be, is of immense importance. One of the biggest problems, when ill health takes away one's career; is the feeling of being unable to contribute to the family's financial welfare, and the loss of self worth and ability to be independent with dignity. When I heard the story of a remarkable man with Parkinson's, who continued working as long as he could, I had to share his inspiring story with you.
American hero Rich Clifford, was accepted and trained by NASA as a shuttle astronaut who successfully completed three flights. Fifteen years ago Rich Clifford realised something was wrong, and that his arm was not swinging as it should when he walked. After neurological tests, he was diagnosed with Parkinson's, but nothing was going to stop him! This is one man who definitely wanted to continue his work, and refused to let Parkinson's take away his dreams and all that he had worked and trained so hard for. Rich Clifford was launched into space with a secret; a diagnosis of Parkinson's. After the March 1996 shuttle mission, Rich Clifford decided he shouldn't fly again and last May underwent a DBS procedure (deep brain stimulation). Take a look at this amazing link and see for yourself the only Parkinson's patient who made it into space!

1 comment:

  1. Inspiring..... yet heartbreaking... you always share the most encouraging information and find the silver lining in every cloud-a wonderful trait, indeed. But I'm praying this big dark cloud called PD will shortly disappear off the face of the earth- as a cure MUST be found soon. The lives of too many wonderful people, one of whom I dearly love, are being seriously compromised and cut short because of this disease...a cure must be found.