About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, July 7, 2013

Home care

At some point, home care may become necessary when suffering a degenerative disease. Whether it's having someone come to your house for several hours a day, or live-in full time help, this is a huge step and a difficult one to accept emotionally for patient, caregiver and other family members living in the house. Also the financial ramifications can weigh heavily on a family if the decision to bring professional 24 hour  help in is made.

Day time help if only for a few hours each day, is less intrusive to one's family routine, but if a full-time care giver is required to live in the family home, a comfortable and suitable bedroom preferably with it’s own bathroom facilities should be taken into account and made available.
Having a stranger in one's space, helping with the most personal basic daily procedures, can at first feel like an infringement upon one's privacy. It doesn't bother me being undressed or showered by another person, but more the fact that I require this help at all, is physiologically hard to deal with. Swallowing one's pride, and allowing someone to help shower and getting dressed is a hard pill to swallow.

Someone asked me the other day why I don’t have a lady to help me. I tried as best I could to explain I haven't reached that stage yet. I fully realise that a day will come when I will have no choice, but until then, I will manage as best I can with the help of my husband and daughter. I'm stubborn and determined to live as normal a life as possible. It's hard for those to understand, who are thankfully not in my position, and although it's only logical and sensible to employ someone to help, it takes time to accept these unwelcome changes along with the emotional disturbance and upset this decision would cause. It's very easy for others to tell you what to do, but they are not in your shoes, and giving out advice, however sound it may be, and with good intentions; if at the wrong time, is not welcomed or appreciated. 

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