About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, September 1, 2013

The Truth

The first of September for me always marks the end of the summer months and the beginning of the cooler weather that autumn will bring. I welcome the changing seasons as they mark the passing of time, and naturally an alteration in one's wardrobe too. All those sweaters stored away on the top shelf alternate with the spaghetti stringed summer tops, and open sandals are replaced by waterproof closed in shoes.

Nothing stays the same, nor should it. We all grow older, hopefully a little wiser, but nothing remains static. Most people don't want to hear the honest truth - they'd rather not know. Why is the truth so hard for some to bear? I have been writing for two years, each day, bearing my soul through this blog in the hope of touching others who are in similar circumstances. If I were to coat everything in sweet frosting, look at life through rosy tinted glasses, my writing would be pointless and mean little to anyone. Sometimes shocked at what I write, people I know personally, are unsure how to relate to me and delicately avoid talking about a particular article or topic that makes them feel uneasy. I'm still the same old "me", but with a insatiable thirst to write about issues that usually get brushed under the carpet. There should be no topic too embarrassing or delicate to discuss. When chronically ill, one's view of the world is understandably quiet different from someone who is healthy and strong. I believe in talking openly, frankly; communication being fundamental. Having a full grasp of the situation, knowledge and education are paramount when dealing with any chronic disease.

Had I not gone through all that I have in my life, I more than likely would not be doing what I am today, as an advocate for Gaucher and Parkinson's disease. I think it is often the misfortunes in life that mould us into the individuals we become. It is life experiences that make each person unique and enable us to feel empathy for others. Of course, in a heart beat, I would rather not have Gaucher and Parkinson's and lead an entirely  different life, but then I doubt very much I would be the person I am today. I guess you can't have your cake and eat it!  

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