About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 18, 2014

The Davis Phinney Foundation for Parkinson's

I have been writing once a week for The Huffington Post since November 2012, sticking to my topic - living with chronic disease. My article last week was dedicated to Parkinson's Awareness Month. Around the world people are making a stand, doing whatever they can during April to raise funds towards research and development, in the hope of finding a cure, and bringing the plight of those living with Parkinson's to the world stage. This week I have written about "support" which we all need in one way or another, whether you are a sufferer or a caregiver. Take a moment to read my latest article on The Huffington Post "Internet Support Groups".

Joining on-line support groups is an additional tool that in the last few years has increased in popularity. Particularly for those who live in out of the way places, having little or no interaction with others in similar circumstances, this is where the Internet comes into its own. Bringing people together from around the world with a common thread, I have found it very helpful and of great support sharing information, keeping well informed and in social contact with others in similar circumstances. Even if you feel you are coping well and managing alone, the sense of camaraderie being in touch with fellow sufferers and their families is without doubt of great benefit.

I came across a public charity called "The Davis Phinney Foundation for Parkinson's which dedicates itself to helping patients, their families and caregivers with information and tools to live the best life possible. The Foundation was founded in 2004 by Olympic medal winner cyclist Davis Phinney, who was diagnosed with Parkinson's disease at the age of 40. Today he is a role model and an inspiration to us all. I spent some time reading thoroughly every page on their amazing site and congratulate the Foundation on the marvellous work they do. I have not come across another site quite like this before and urge you to take look at The Davis Phinney Foundation for Parkinson's.

2 comments:

  1. Great info, thanks Ealine

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  2. Thanks for sharing this great site. Interesting reading. Keep up the good work.

    ReplyDelete