About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, March 20, 2015

Which Disease is Worse?

Attending a recent public speaking engagement, a lady wanted to know what question am I most frequently asked? I didn’t have to think very hard, as one particular question immediately sprang to mind: “Which disease disturbs you more?” My answer is: Parkinson’s is undoubtedly more bothersome for it is relentless in demanding my attention 24/7 and never gives up.

A few symptoms overlap, and are the same for both diseases, which are extreme fatigue, pain in limbs, difficulty in walking and serious constipation. These symptoms are difficult to pinpoint the origins, as to whether they are Gaucher or Parkinson’s related, or a combination of both.

However when Gaucher disease decides to take front stage, Parkinson’s has to step back and wait in the wings. Bone problems with Gaucher disease can be of a most painful and serious nature, sometimes requiring hospitalisation and even surgery in extreme cases.

1 comment: