About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, May 22, 2015

The Scores on the Doors

I’m not sure who first said this line: “Life isn’t about waiting for the storm to pass, it’s about learning to dance in the rain” but I find it very pertinent and can relate. This is what life is, and making the most of it, no matter what your circumstances, is by far the best plan. Since being diagnosed with Parkinson’s, I live very much in the moment, and make the most of what I have.

If you too suffer from Parkinson’s you no doubt have good and bad days like myself. I live for the good days and get through the bad days as best I can. What a peculiar and unpredictable disease.

Naturally there are times that are terribly frustrating, such as socialising. When  invited somewhere and Parkinson’s decides to butt in where it’s not wanted, no amount of resolve helps. When this rotten disease is in the driving seat, one has to gracefully concede. It’s not a matter of giving up or giving in, but realising how the disease works and knowing when to fight and when to concede. So the scores on the doors today are Elaine 0 – Parkinson’s 1, but tomorrow will be another day!

When you’ve raised your children and taken care of a parent, now finding you are the one who needs taking care of is a hard pill to swallow. But who cares for the carer? This is the subject for my article in The Huffington Post this week.

Take a look at this YouTube clip, a very original idea on how to draw attention to a cause. They then go on to show you behind the scenes, interviewing one of the participants who happens to be a Parkinson's patient. This clip speaks volumes and expresses exactly what so many of us experience and can understand.