About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, July 3, 2015

Gaucher Film Contest

As an advocate I have been sharing my story, in the hope of bringing greater awareness to Gaucher disease. Story telling is a wonderful way of enlightening others about a rare disease. It was with this in mind that I wrote a collection of poems which has been made into a book and is available on Amazon.

I decided to share my story through poetry, recalling my early years to adulthood, which some may find resounding similarities to their own experiences. I hope fellow Gaucher patients and their families will know they are not alone, and realise just how far medicine and technology has come in the last 50 years. Circumstances were very different when I was diagnosed, and thankfully over time great strides have been made.

I am honoured to be a judge on the international panel for "The Spotlight on Gaucher Film Contest" aimed at patients and their families. The contest encourages those living with Gaucher disease, to tell in a unique way the story of how they live with a rare disorder. To find out more, click on this link and read about an exciting opportunity this summer to become involved, or read more in my article in The Huffington Post.