I wrote a collection
of poems about growing up with Gaucher disease to hopefully help spread
awareness by sharing a personal story from the patient’s perspective. Putting a
face, name and a unique story to any rare disease brings attention and sheds some light on not only what the patient
goes through, but also how a family is affected and the ramifications involved
suffering a rare disorder.
Friday, October 16, 2015
Gaucher Awareness
I wrote a collection
of poems about growing up with Gaucher disease to hopefully help spread
awareness by sharing a personal story from the patient’s perspective. Putting a
face, name and a unique story to any rare disease brings attention and sheds some light on not only what the patient
goes through, but also how a family is affected and the ramifications involved
suffering a rare disorder.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment