Of all the diseases
that are known to mankind, I think Parkinson’s stands out a mile simply for the
bizarre way it lends itself to humour, albeit rather dark humour. Having the ability to laugh
at yourself and make light of a serious situation that’s unlikely to improve, is
a distinct plus when your world is falling apart and the future looks far from
rosy. Many people adopt this very attitude with a fighting spirit as a coping
mechanism when living with Parkinson’s.
Although hiding
behind a façade and putting on a brave face is a necessary tool enabling you to
carry on, absurdly it can eventually be ones downfall. Family, friends and
amazingly even some doctors, may not realise the full debilitating nature of Parkinson’s,
and the severity of this life changing disease. How can we then blame people
for not knowing the true terrifying extent of a disease if we have only ever
shown them a false picture? It’s not their fault, but don’t you think it’s
about time we educated them? So let’s put down the happy smiling mask for one
moment, and reveal what’s really going on.
If you have the
stomach to read on I will elaborate, but I would like to reiterate that I am
just a patient, sharing personal experiences, so please remember that every
individual may have a different combination of symptoms along with side effects
from medications. No two patients are the same and what works for one, may not
work for another. I would urge any patient to speak with fellow sufferers,
whether in person or through the net, to keep abreast of all the latest news
and articles available and consult with their medical team, and glean from
these various sources the information that is applicable for their particular
situation in order to find what works best for them.
Elaine people need to hear what you are going through. You are amazing for continuing to write at such challenging times. Sending you many good vibes to keep sharing.
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