About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, June 15, 2018

Never give up hope

Each day I wake up to hear the birds chirping away in the garden, announcing the night is over and it’s a new day. One of our neighbours parks his truck in the street, and the familiar sound of the engine is very distinct. Like clockwork, every morning I hear him start up his truck and off to work he goes. You could set your watch by his departure. Gradually the street comes alive as families send their children off to school and their parents leave for work. Everyone is so busy, they barely have time to breathe.

Whilst this hub of activity goes on around me, my life is slowing down, and I find myself moving from the slow lane onto the hard shoulder, and feel like a spectator of sorts, watching life speed by in the fast lane. There are so many things I cannot do anymore, therefore I try to concentrate on the things I can do, but the list is getting worryingly shorter as time passes by. Living with a degenerative disease, nothing stays the same for very long.

Living with Parkinson’s disease is like living with a ruthless thief, who stealthily steals a little more of my life each day. It doesn’t help to grieve for the loss but accepting and coming to terms with my ever-changing situation is not easy. I try to keep positive, and having support from family and friends, well let’s just say, I couldn’t get by without them, especially my amazing husband who is also my caregiver.

Before I was diagnosed with Parkinson’s, I must admit, I knew very little about this and wish with all my heart that I was still blissfully ignorant of this rotten disease. We all have hopes and dreams for the future, but I never envisaged my life turning out this way. I guess no one does. All I can do, is make the best of a bad situation, stay cheerful, maintain a sense of humour and never give up hope.


  1. These same thoughts go thru my mind. Some days all the
    limits I keep bumping into just make me sad. This is
    important, I think, to mourn the self left behind so
    with realistic gratitude we can open into who we've
    become. You're not alone.

  2. Elaine.you are awesome,never surrender.

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