About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, August 25, 2013

Apathy and depression

Due to the wide range of symptoms Parkinson's patients manifest, some of them naturally overlap, making it difficult for any doctor to diagnose. Fatigue being a common symptom not just of Parkinson's but many disorders, can be viewed as the patient being apathetic or depressed. There is a huge difference between fatigue, depression and apathy, none of which should be bundled together or confused. Depression can be treated with various antidepressants, but if wrongly diagnosed and the patient is suffering fatigue and apathy, then the antidepressant is not going to work. I believe it is therefore crucial, when seeing your neurologist, to paint a clear picture (and I don't mean arrive at his office with easel, paints and brushes) but to express in the best way you can exactly what you are experiencing, being open and speaking honestly about your concerns. This is where you have to be your own advocate, for although it is advisable to attend all doctors appointments with your caregiver, spouse or someone close, they may have a very different view on this particular element of the disease.

Masking also can give the impression that a person looks bad tempered, cross or down - when in fact their mood might be perfectly fine, simply the "masking effect" projects a different picture. When I feel my face freeze, I know I have a blank expression as if I don't know what's going on around me, yet my mind is sharp, I have complete clarity, and am able to express myself whether speaking or writing. In other words, don't jump to conclusions and judge when you are in the company of someone with Parkinson's.

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