I was contacted by Michael Margolis, a Television Producer from Los Angeles who is making a series of webcasts to connect the Gaucher community worldwide. Last night, Michael interviewed me over the Internet and I introduced myself explaining that I have Gaucher disease and Parkinson's and expressed interest in future webcasts, with the possibility of focusing one segment on the connection between Gaucher and Parkinson's disease. If you have Gaucher, or like myself suffer from Gaucher along with Parkinson's, and have any suggestions as to particular issues you would like to see included in future webcasts, please send me a message and I will pass on this information. I think this could be a wonderful opportunity of hearing from fellow sufferers around the world, making connections and creating an international community that will strive to offer the latest medical information and news. Keeping up to date and informed is paramount when suffering any chronic illness. I was delighted to touch base with a fellow Gaucher sufferer, and appreciate the opportunity in being part of this new innovative project.
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.