No matter how someone tries to understand what it’s like to have Parkinson’s disease, I don’t think anyone but fellow sufferers, can really fully comprehend. One of the reasons I wrote my book of poems was not only to let other PD sufferers know they are not alone, but to educate and bring greater awareness of this dreadful debilitating incurable disease. With the medications on offer today, the visible well known symptoms of shaking and tremors can be reduced, but there is a large array of other symptoms apart from simply shaking. I can’t tell you how many times people who do not understand the disease, take one look at me, see my long thick hair, my face made up, decently dressed and of course (what really confuses them) is the constant smile on my face and good humour. Generally people don’t realise how underneath this façade, (which is a necessary emotional tool keeping me sane and enabling me to get through each day), that below all this, I am in considerable pain, feel very unwell and could they magically stand in my shoes for a moment, they would truly be shocked. I wouldn't wish Parkinson’s on anyone, not even for just two minutes standing in my shoes!
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