About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, February 24, 2012

Three wishes

When my daughter was very young, someone asked her “If you had three wishes, what would they be?” The answer was typical of any child that age and I believe it went something along the lines of: “Going to Disneyland, getting a puppy and living in a big house with a swimming pool.” The person questioning her asked “ Wouldn't you wish that your mummy didn’t have Gaucher disease?” to which my daughter’s direct and straightforward answer without a moment’s hesitation was: “Mummy wouldn't be the same mummy without Gaucher!” This statement so honest and simple from a child’s perspective, made me think. My daughter had never known anything else – I had been ill since she was born. Just as some mothers have blonde hair or work from 9-5 in an office, I have Gaucher disease. It’s as simple as that. There was never a question or thought in her mind of wanting or wishing for a different mother. Gaucher doesn't define who I am, but without doubt it is part of my life. What defines me is who I am and what I do. Despite having Gaucher and Parkinson’s I continue to live my life to the full, and do my utmost to bring greater awareness of these two diseases, whilst helping and offering support to others wherever I can. However, if there are any genies or fairy Godmother’s out there reading my blog – could you please grant me three wishes (I’d make do even with just one wish)!

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