Making the most
of each day and enjoying every moment to the fullest is how I try to live my
life. I hadn't realised however till recently how my campaign to offer support
to fellow sufferers and create further awareness was starting to have a
detrimental effect upon my health. For anyone with Pakinson's to sit for hours
hunched over a keyboard writing non-stop, although gave my days purpose and
making contact with others around the world in similar circumstances was
rewarding from both sides, it was beginning to sap my strength. Having
Parkinson's, sitting in a bad stooped over position for so long each day, is
not conducive to one's wellbeing, and I found I was literally crushing my lungs
and heart, leaving me breathless.
You know when
you've made a good decision, when you feel a sense of calm and peace in your
heart, your inner voice telling you it's the right move. No one could have told
me to slow down and cut back the hours I have been dedicating to my campaign,
for some things have to come at their own time, and from within. Those who know
me personally, including my doctors, are relieved I finally came to this decision
for they could see the deterioration over the last year, and knew I was taking
on too much. Whether I have caused the recent deterioration by my over zealous
nature, or if my decline in health is simply a natural progression of the disease,
I guess we'll never know. Now I have to focus on "me", a most
unfamiliar scenario, for my attention has always been first and foremost to my
husband and daughter.
Keeping a happy
medium between fighting a disease, being pro-active and doing as much as one
can to help others and yourself, whilst not endangering your own health is a
very fine line to walk, or in my case "shuffle"! I have been walking
that line for a few years now, but somewhere along this path I must have
strayed a little too far. So now back on track, my aim is to ensure I am as
well as I possibly can be. My neurologist has tweaked my PD medications and
hopefully this will make a difference.
As anyone with Parkinson's will tell you, it’s a constant trial and
error with changes in pills, dosages, and even times of the day when
medications should be taken. A lot of patience is required until the optimum
regime is reached.
My latest article on The Huffington Post can be read on-line: "Parkinson's Keeps On Taking". Friday is my
favourite day of the week for it indicates the beginning of the weekend, so I
will leave you here and wish you well. As they used to say on the BBC,
"Tune in same time, same station, next week!" and I'll be here.
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