About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, January 24, 2014

There's No Time Like The Present

Making the most of each day and enjoying every moment to the fullest is how I try to live my life. I hadn't realised however till recently how my campaign to offer support to fellow sufferers and create further awareness was starting to have a detrimental effect upon my health. For anyone with Pakinson's to sit for hours hunched over a keyboard writing non-stop, although gave my days purpose and making contact with others around the world in similar circumstances was rewarding from both sides, it was beginning to sap my strength. Having Parkinson's, sitting in a bad stooped over position for so long each day, is not conducive to one's wellbeing, and I found I was literally crushing my lungs and heart, leaving me breathless.

You know when you've made a good decision, when you feel a sense of calm and peace in your heart, your inner voice telling you it's the right move. No one could have told me to slow down and cut back the hours I have been dedicating to my campaign, for some things have to come at their own time, and from within. Those who know me personally, including my doctors, are relieved I finally came to this decision for they could see the deterioration over the last year, and knew I was taking on too much. Whether I have caused the recent deterioration by my over zealous nature, or if my decline in health is simply a natural progression of the disease, I guess we'll never know. Now I have to focus on "me", a most unfamiliar scenario, for my attention has always been first and foremost to my husband and daughter.

Keeping a happy medium between fighting a disease, being pro-active and doing as much as one can to help others and yourself, whilst not endangering your own health is a very fine line to walk, or in my case "shuffle"! I have been walking that line for a few years now, but somewhere along this path I must have strayed a little too far. So now back on track, my aim is to ensure I am as well as I possibly can be. My neurologist has tweaked my PD medications and hopefully this will make a difference.  As anyone with Parkinson's will tell you, it’s a constant trial and error with changes in pills, dosages, and even times of the day when medications should be taken. A lot of patience is required until the optimum regime is reached.

My latest article on The Huffington Post can be read on-line: "Parkinson's Keeps On Taking". Friday is my favourite day of the week for it indicates the beginning of the weekend, so I will leave you here and wish you well. As they used to say on the BBC, "Tune in same time, same station, next week!" and I'll be here.

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