Sometimes it’s difficult for my husband to get a word in edge-ways. I always insist that being a chatterbox is inherited, and therefore can’t help it (well that’s my excuse and I’m sticking to it!) I thought I’d give my husband a chance to have his say today, so I will now hand over the keyboard to my better half:
OK
October has arrived, so that means its Gaucher Awareness Month. Personally I
became aware of Gaucher many years ago, when Elaine and I were dating and getting
serious, she said to me one day “I’ve got Gaucher disease”. At that point I
think I became wary, but after listening to Elaine’s explanation, I asked a
friend of mine who is a doctor and I decided to read up on what it meant to
live with Gaucher and what if any implications it would have on our future
relationship. Well the more I found out the more I realized there was nothing so
scary being “wary” and informed became “being aware”.
Becoming
aware of a new subject is simply learning about something that previously was
unknown. So let’s do everything we can during October to educate people so they
understand what Gaucher disease is and how it manifests itself in different
people. Gaucher disease is not something to be afraid of; the more aware people
are, the more questions and research will be done to help sufferers. Thanks,
let’s spread the word……
Did Napoleon say: “Not tonight Josephine”, or
was it a Gaucher or Parkinson’s patient? Take a look at my article in The Huffington Post if you're not sure!
Great to hear from Brian on this. I can remember the first time I told my now husband about Gaucher. We had barely started dating but I thought I should warn him about my protruding port-a-cath and of course this seemed to require introducing Gaucher. I suspect it was a bit too much information for a second date but I was really the only anxious one. He just sort of nodded OK and didn't seem phased by it. Despite seeming so awkward at the time, it obviously worked as we are still together over 10 years later =)
ReplyDeleteThanks for sharing your perspectives on such matters.