About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, October 10, 2014

Diagnosis of Gaucher Disease

Here is a poem I wrote one night, when unable to sleep. I thought it rather appropriate since October is Gaucher Awareness Month. The poem is entitled "Diagnosis" relating to Gaucher disease:


Diagnosing a rare disease, is difficult a task,
Relieved to rule out cancer, you continue to ask.

Why are platelets low and haemoglobin out of whack?
Still awful diseases in one's mind lurk at the back.

A doctor cannot know every single rare disease,
Hence correct diagnosis doesn't come with ease,

If no family medical history exists to help give a clue,
Appearing you're the first with something entirely new.

It can take a long process, which is highly frustrating,
But once on the right path the doctor begins debating.

Gaucher a rare disease, passed on from mother and father,
Often affecting siblings, a sister or a brother.

Many years ago, a sternum puncture, was the only way,
Of determining Gaucher, but this is not the case today,

Now it’s a simple blood test, no pain or fear,
Will give a diagnosis that's absolutely clear.

Technology and medicine have improved by far,
With greater awareness, we intend to lift the bar.

October is Gaucher Awareness month internationally,
Together we campaign, as a worldwide family.

To bring better understanding of Gaucher, a disease that’s rare,
Help me spread the word, and show how much you care.

Written by Elaine Benton 2014©

1 comment:

  1. It's special to get to read your poetry, Elaine. The words really resonate with my family's experience with Gaucher.
    -Emma Rooney