About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, April 24, 2015

Parkinson Poetry

An inspirational story of a friend who has Gaucher disease yet able to run marathons, is the topic of my article this week in The Huffington Post.

A fellow Parkinson’s patient has written some marvellous poetry, and willing to share with you, here is a portion of one of Peter Middleton’s poems entitled “Tribulations”.

Neural receptors are losing their way,
Parkinson’s people are having to pay.
Substantia nigra falls into decay,
Black barren neurons are out on display.

Why is the Dopa-mine leaving our brain,
Express expulsion with speed of a train.
When eighty percent has dwindled away,
Developing P D is what Neuros say.

Fumble your fingers and twiddle your thumbs,
Shiver your lumbar and waggle your bums.
Fiddle with buttons and grapple with belts,
Putting your shoes on with horn surely helps.

You open the door and can’t let it go,
Froze to the handle and all in slow-mo.
Typing some letters takes such a long time,
Missing the square keys along every line.

Eating your dinner will embarrass some,
Wife cuts my meat up, but not like my mum.
Scooping my peas up with ladle or spoon,
Helps me to finish not later but soon.

These are the trials that befall us all,
Don’t let them conquer or Parkies will fall.
Grinding your molars will strengthen your mind,
Snarl like a wolf and leave pity behind.

By Peter Middleton 2008 ©

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