It takes courage to film one’s self and
allow the world to see exactly what it’s like to live with Parkinson’s disease.
One spirited young man, Kendall Lay, has done exactly this. He usually makes short
films about other patients, with the intention of lifting spirits by encouraging
and showing support to fellow sufferers. However with Parkinson’s Awareness
Month in mind, one of his recent films portrays himself at various times of the
day exhibiting Parkinson’s, leaving no doubt or confusion as to what happens when
medications are working and when they are not.
This short film was not meant to dishearten anyone,
but plainly shows the simple truth, in an attempt to educate and bring further awareness
to the debilitating symptoms and side effects experienced by those living with
Parkinson’s.
Even some members of my own family don’t
understand why I appear almost unaffected at times, and on occasion can witness
the harsh realities of the disease. Caught at the right time of day, my
medications are working and I can function to a fair degree, but catch me in an
“off” moment, when the medications have ceased to work, and you’ll hardly
recognise me. Understandably confusing to those who know little or nothing
about Parkinson’s, it can appear that one minute you have a debilitating
disease and the next it has miraculously disappeared.
Worrying about when I'm going to next freeze is a waste of energy, but nonetheless, it is in the back of my mind and perhaps yours too. Ever frozen in the supermarket and left wondering if anyone noticed? Have a read about my escapade this week in The Huffington Post.
Worrying about when I'm going to next freeze is a waste of energy, but nonetheless, it is in the back of my mind and perhaps yours too. Ever frozen in the supermarket and left wondering if anyone noticed? Have a read about my escapade this week in The Huffington Post.
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