About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, May 18, 2018

Are You on the Duodopa Pump?

I spent Tuesday in hospital being checked out by a Gastro Surgeon, as I’ve been in a lot of pain in the area where the hole and pipe are attached to the Duodopa pump. If you are on this treatment and are experiencing constant pains in your tummy and a little light bleeding, it would be great to hear from you. Sharing experiences with other patients is priceless.
Another week has flown by, and my back is much better than it was. Of late, my voice sounds gravelly and I often have to repeat myself several times till I’m heard. It’s as if someone has turned my volume down. I also have great difficulty in swallowing (particularly at night when I’ve been disconnected from the pump). I have sessions with a doctor who specializes in speech and swallowing difficulties, and I have various exercises that I do several times a day.

I would just like to say “Happy birthday” to my cousin. Have a great day and hope you have fun celebrating today.

There’s a cheesecake sitting in our fridge whispering my name. I love cheesecake but rarely have it, as I’m the only one in the house who likes it. Along with millions around the world, tomorrow our eyes will be glued to the television seeing the Royal Wedding. There is something about all the pomp and ceremony that captivates the world.

So whatever you are doing this weekend, whether celebrating your birthday, watching a Royal wedding, eating cheesecake or seeing the Cup Final between Chelsea and Manchester United. “Come on you Blues!” (just in case you wondered which team we support), have an enjoyable time surrounded by those you love.
Posted by Parkinson's, shaken, not stirred at 9:30 AM

1 comment:

  1. isabellaMarch 12, 2021 at 2:31 PM

    My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.

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