About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Friday, May 4, 2018

Just when you think things are improving!

How’s your week been? Hopefully better than mine! When suffering from Parkinson’s disease you learn to expect the unexpected, for life can throw a curveball and this latest episode is one I could have well done without. As if Gaucher disease and Parkinson isn’t enough to contend with, I’ve been in bed since Sunday with a herniated disk in my lower back causing terrible pain. Recommended to lay still, is almost impossible if you have Parkinson’s. I can’t stand, sit or walk at the moment, so writing my blog this week is taking a great deal of effort.

Fortunately, my husband is quite a dab hand in the kitchen, but there are times when “takeaway” is the quickest and easiest solution for the evening meal.

What did we do before there was “takeaway”? When I was young, growing up in England, the only “takeaway” was the quintessential fish and chips. Traditionally, fish and chips were wrapped in yesterday’s newspaper for insulation and to absorb the grease, with an inner layer of white paper for hygiene. Sadly, fish and chips are no longer served in newspaper due to “health & safety” regulations. The cod, haddock, plaice or hake was deep fried in a golden delicious batter, served with thick unevenly cut chips topped off with a good shake of vinegar and salt.

Recently, a fish and chip shop opened nearby, where they fry fish to order so everything is fresh, and a tasty tartar sauce which they make themselves, but no yesterday’s newspaper in sight. In my present condition, I think you can guess what we’re having for dinner tonight!

1 comment:

  1. My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.