About me

PROFILE:
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Saturday, July 28, 2018

Battle Weary

As Parkinson’s runs its course, I am forced into battle day and night. I’ve been fighting this relentless disease for 11 years, but the last three years have been particularly hard and are starting to take their toll on my husband and myself. In the early stages of Parkinson’s, I managed to cope, but as time passed, I was experiencing more “off” than “on” times and had no quality of life.

It was on 5th November 2017, that I changed from oral medications to Duodopa which comes in a jell form administered by a pump directly into the small intestine. Despite Duodopa being a life changer – it is not a cure and doesn’t stop Parkinson’s from getting worse. However, it has given me better quality of life and has bought me time.

My caregiver is my devoted husband, and I cannot think of a harder job. Together we fight Parkinson’s but are becoming battle weary. My husband has taken a long overdue break and gone away for one week to re-charge his internal batteries from a physical and emotional sense. My daughter and her husband, along with family and friends together have me covered for the week, taking care of me and ensuring I’m not alone.

Yes, I miss him terribly, but I know how much he needs a rest and to take time out from our incredibly difficult situation. I want to thank all those who made this possible – we are extremely grateful. This break also allows him to attend the wedding of our dear friend’s daughter. I’m sorry I couldn’t join in the celebrations, but I’ll be there in spirit and wish the young couple congratulations.

4 comments:

  1. I can't imagine a harder job than my Bob has. And the future
    doesn't mean a cure-just gets worse. I try to be mindful of his
    energy level and that he needs to get away from the situation.
    You're so very wise.

    ReplyDelete
  2. My husband and I wish you the very best. He has Parkinson’s and I am the caregiver. Unfortunately i have my own health issues and without dear friends I don’t know what we would do, Your blog is an inspiration

    ReplyDelete
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    Hi, out there! I believe sharing my story on how I overcame Parkinson disease will help someone out there too, maybe a love one looking for a cure, or a friend. We share our experiences as support group to help others find hope. It wasn’t really easy, but I am glad my efforts in serach for a cure paid off through Dr. Scott herbal medicine which came through for me in my dire time of distress and losing all hopes I held on.

    I retired from the US Army and was diagnosed of PD at 57 years of age. I saw it as a usual thing maybe because of my time in the army and all that. I was put on Sinemet by the doctor who said it was the most effective treatment and eventually a possible cure. I hoped for a cure and used the med as instructed. Instead of a cure, I had a lot of side effects much of; chest pain, dizziness, confusion, hallucinations, anxiety and worst was the thought of suicide. After a while, due to Sinemet side effects, my doctor switched me over to Amantadine; frankly there was no positive result from both medications prescribed. Instead, I got worst while on these medications.

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