My husband has returned safe and
sound from his week away. Being my primary caregiver, the last two years have
taken their toll. I want to say a huge THANK YOU to all those who took care of
me during this long overdue break. Until you step into his shoes and get a
clear hellish look at Parkinson’s disease up close, you cannot begin to imagine
the raw cruelty, festering like an open wound, gradually that eats away both
the sufferer and caregiver. A caregiver must have a break from the tyranny that
rules endlessly, to
recharge their internal batteries, from the ongoing emotional and physical demands,
otherwise they will eventually burn out and not be able to function.
My family and friends rallied around
and a rota system put in place ensuring that I wasn’t alone at any given time. The
nights were particularly hard as I’m disconnected from the Duodopa pump, and
this is when the painful muscle spasms start and can go on for hours. Who needs an expensive membership to a gym when you've got Parkinson's to give you a personal workout at home? If I’m
really unlucky – these antics can continue the entire night and only when I’m
totally exhausted and its time to reconnect to the pump at 05:00 do I find relief.
Every patient is different, and experiences are not the same. It’s a matter of
trial and error. Other patients on the Duodopa Pump may not suffer during the
night as I do.
I am so grateful to have the caring
support around me, and realise it may have been a shock for them to see what my
husband and I have to endure, and how very important it was for him to have a
break from it all.
My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.
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