I walk very poorly, shuffle my feet and with my back often hunched over as if I am rehearsing a scene from The Hunchback of Nostradamus, this must be far from an appealing look for a 49 year old woman. Appearing confused and forgetful recently, my medications have been adjusted once again, which for any Parkinson’s patient is a constant battle of trying to get the optimum dosage right. My life has changed in so many drastic ways since diagnosed with Parkinson’s; it’s a daily battle trying to cling on to whatever I can of my former self. With numerous changes, I often wonder if my family are able to recognise that I'm still ‘me’ inside this dilapidated malfunctioning body of mine; the wife and mother who was once so energetic, capable and organised. Today sadly many young people are diagnosed with Parkinson’s and the general public are becoming slowly aware that this is not a disease strictly for the older generation. Everywhere I go and everyone I meet is an opportunity to educate and spread the word about Parkinson’s. You too can do your part by bringing greater awareness through openly telling your story to those you meet as an ambassador for Parkinson’s disease.
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.