I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.
Thursday, July 26, 2012
I have been asked by a number of people if I've had DBS: Deep Brain Stimulation. The answer is “no”. This highly invasive procedure is normally only advised once a patient is drug resistant and reached the stage of literally not being able to walk or move. When medications no longer work, then obviously the option of DBS should be looked into. Don’t be shy in asking questions and getting other professional opinions. If you can find someone living in your area, or who you can contact via the Internet, who has undergone a DBS recently, it’s a good idea to speak to them personally and hear what they have to say on this matter. Speaking with some fellow sufferers who have undergone this operation, it has vastly improved their quality of life. However, there are some serious side effects, and several ladies I have talked with, appear to have problems regarding their speech. If you would like to read about one very brave lady’s account of her journey with DBS click on Karyn’s blog and read for yourself her personal story.
Posted by Parkinson's, shaken, not stirred at 7:00 AM