Suffering a rare disease, or any chronic condition, a patient’s case can become quite complex and the need for input from various doctors specialising in different fields may be required. Having several doctors looking at a patient through their own field of expertise, working together as a team, is the best health care for the patient, enabling a complete picture of the case being presented ultimately ensuring that the correct diagnosis and treatment plan are set in place. I am very fortunate indeed to be taken care of in this manner, and the Professor who looks after me, being one of the leading doctors specialising in Gaucher disease in the world, I couldn't be in better hands. He has a complete team of doctors, nurses, and technicians that he works with, all of whom are trained to spot the unusual abnormalities that are manifested in Gaucher disease. Add to this that I have Parkinson’s as well; my doctors have their work cut out for them! Without their dedication and excellence – I don’t know where I would be today!
I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.