About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Sunday, April 15, 2012

Early Diagnosis

Correct and early diagnosis is very important, not only with Parkinson’s, but any disease. Often initial signs of Parkinson are very vague, few and seem of little importance. If you are aware of your body and know instinctively that something is wrong, don’t waste precious time, and do not be put off by a reluctant doctor. I was fortunate to have been diagnosed very early on, partially due to the fact that there are several family members with both Gaucher disease and Parkinson’s. Although Parkinson’s is not necessarily hereditary, in our family, there is a distinct link. Receiving such a quick diagnosis, I was able to start taking Rasagiline early on, and although I have no way of determining if I would be the same or worse today, and there are many contributing factors to take into consideration, I feel sure that early treatment has helped significantly. (I am not a doctor, merely a patient telling my own personal story.) Listen to your body, if you suspect you have Parkinson’s make sure you see a neurologist, and get a second opinion if you are not satisfied. You have to take care of YOU – for no one else will do it for you!

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