About me

I have been writing poetry and stories since I was a child, and a love of reading was instilled in me from an early age. I am passionate about writing, and hope you enjoy the books I have written. Whilst most of you sleep soundly in your beds, like many Parkinson’s patients, insomnia dictates, so during those hours that sleep eludes me, the house is tranquil and quiet, an atmosphere perfect to immerse myself in writing. My life has been a series of strange events, which have without doubt contributed to my creativity. To publish anything is to bear one’s soul to the world. It is to stand naked and let everyone see who you really are. I have poured my heart and soul out on paper and I hope to share this journey, immersing you in a story, capturing your attention and firing the imagination. Through my writing and public speaking I hope to bring greater awareness to the general public about living with chronic disease.

Wednesday, April 25, 2012

Family relationships cont.

I reiterate I am not a doctor, simply a women suffering chronic disease sharing my thoughts and feelings with you through this blog. To continue with yesterday’s topic, when a member of the family is chronically ill, much time, energy and thought focus on that individual. People are always so busy asking how I am; they may forget to ask how my husband is bearing up. Attention to other family members, in particular children, can sometimes unintentionally wane. Children may be old enough to fully understand and appreciate these unfortunate circumstances, but it does not detract from the fact that their sick parent often takes priority. Limitations on family trips and outings, even simple visits to the doctor or shopping (groceries or other items) all have to be adjusted accordingly taking into consideration my condition, and what should be a regular excursion often turns into a military style operation. Every facet of daily life has to be thought through, and this continuous endeavour can be exhausting for all the family. My daughter copes admirably, and helps me without question or hesitation, but I'm sure there must be times; it would be a sweet reprieve for her, not always having to think about my needs first. Being honest with your family; keeping the lines of communication open, and upholding a pleasant atmosphere in the home are just a few ways which help improve a challenging scenario.  

1 comment:

  1. I wonder how many people are aware of the points you brought up here Elaine.
    You have an amazing ability to describe your, as well as your family's situation in a no-nonsense kind of way. For this reason, I seldom miss your daily blogs.